Drugmakers Help Turn Patients With Rare Diseases Into D.C. Lobbyists


Drugmakers Help Turn Patients With Rare Diseases Into D.C. Lobbyists

WASHINGTON — Wearing a blue T-shirt and worn jeans, Marc Yale stood near the welcome pole at the annual Rare Disease Legislative Advocates conference handing out money.
Envelopes in his left hand held $750 checks to help patients with a rare disease cover the cost of a whirlwind trip to the nation’s capital. The money was donated by the pharmaceutical industry.
“Obviously, we wanted to send as many patients to advocate on Capitol Hill as possible,” said Yale, the director of the International Pemphigus & Pemphigoid Foundation.
Yale collected $7,500 in donations from a specialty pharmacy and a drugmaker that manufactures treatments …

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