Faith And Family: Family Helps Raise Apert Awareness
Faith and Family: Family helps raise Apert awareness
VIDALIA — She’s only 5 years old, but Ellis Malone already has the ear of Louisiana Gov. John Bel Edwards.
Though she was mostly concerned about asking the governor where the ice cream could be found at the capitol, Ellis, her family and a handful of other families from across the state recently made a trip to Baton Rouge for a much bigger purpose.
Ellis is the daughter of local residents Heather and Matt Malone, and was born with Apert syndrome, a rare condition involving abnormal growth of the skull and the face due to early fusion of certain sutures of …