Pharma Teams Up With Rare-disease Advocacy Groups On Capitol Hill | Spectrum | Autism Research News


Pharma teams up with rare-disease advocacy groups on Capitol Hill | Spectrum | Autism Research News

Shira Strongin, left, and Emily Muller, right, pose at the Rare Disease Legislative Advocates conference in Washington, D.C., on 28 February 2017.H. Darr Beiser / Kaiser Health News
Wearing a blue T-shirt and worn jeans, Marc Yale stood near the welcome pole at the annual Rare Disease Legislative Advocates conference in Washington, D.C., handing out money.

Envelopes in his left hand held $750 checks to help people with a rare disease cover the cost of a whirlwind trip to the nation’s capital. The money was donated by the pharmaceutical industry.
“Obviously, we wanted to send as many patients to advocate …

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